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Letter to My Newly Diagnosed Self

Dear Alene,

You’re scared, I know. 

You’ve known something was off for a while, but now you have the answer. It’s the answer you never wanted. 

You have MS. 

You’re wondering… what is MS?!?

Isn’t that what people have that end up in a wheelchair? 

Are YOU going to end up in a wheelchair? 

All the “what ifs” are flooding your mind. 

It’s okay to be scared. 

You just got thrown into this world of MRIs, lesions and doctor’s appointments.

You’re faced with decisions that you don’t feel qualified or ready to make. 

Yet, you’re doing everything you can to keep a smile on your face to reassure everyone around you that you’ll be fine. “You got this.”

But deep down all you want is someone to reassure YOU that it’s going to be okay. 

Alene, I need you to hear something and I want you to hear it in your heart. 

Your life isn’t over. As hard as this may be to see right now, it’s actually just getting started. 

We are going to put all the pieces of this overwhelming  puzzle together and you will actually create a new picture for your life that is actually better than you can imagine. 

The road doesn’t stop here. 

I want to walk with you, every step of the way, so together we can start to make sense of this mess that you’re in. 

Sure, you’ll make changes. 

You’ll toss the Twizzlers and drink the smoothies. 

You’ll roll out your yoga mat and try weird things like oil pulling. 

But you’ll also start saying no to things that drain you and yes to the things that matter most to you. 

This is Your Invitation

This is your invitation to get off the treadmill of never-ending to-do’s so you have the time and energy for what really matters to you.

Do you even remember what matters to you anymore?

I know, it’s been a while. 

Let’s get clear on that while we’re at it because this diagnosis came with a humbling gut check – you were burning yourself out. 

You knew it. 

You felt it. 

But you also believed that you had to do it all. 

Now you’re faced with the reality that MS or not, that wasn’t sustainable. And this is where we can make life better. 

That lifestyle wasn’t serving you. 

There’s more to life than getting it all done. 

What do you want out of life? 

I know your mind is automatically thinking that you now have to lower your expectations for yourself and your future because “you have MS.” 

Yes, you have MS AND you’re going to live an amazing life. 

Trust me on this. 

Let me walk alongside you, not because I have it all figured out. I want to be in this with you because I have felt the fear… overwhelm… defeat… and disappointment when I heard the words, “you have MS.” 

I have seen what is possible.

You have a beautiful future ahead of you. 

Let’s get you out of this overwhelm and fear right now, so that you can start to see and create a better life ahead.

All my love, 

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Hi, I’m Alene

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